MEMORIES FADE and YOU DO GET BETTER

MEMORIES FADE and YOU DO GET BETTER, but there’s always a niggling in the back of your mind keeping you alert and cautious… I wrote the post below 7 years ago and while I feel incredibly Blessed to have avoided most of the pitfalls of cancer, I still wonder with WHY, why me? I don’t drink, I don’t do drugs and I eat incredibly well with scratch cook and yet my health is a continual issue, still even now.

A New Beginning… and oh SO Lucky

I’ve been struggling with a way to get back into the swing of things here in blogland. You see just 2 months ago today I was struck with those words that we all fear hearing from our doctor. You know,  any phrase that includes the words cancer, chemotherapy, radiation or surgery. For me it was the worst Christmas present imaginable so I persevered and didn’t really let on to most of the family in the beginning – no sense ruining anyone else’s holidays since no further testing could be scheduled until after Christmas.

You truly do go through the 5 stages of grief augmented with periods of disbelief and a lack of comprehension.  It doesn’t matter how well schooled you are or how intelligent you are, those words hit you like a ton of bricks.

Last year when I began my food blog, Always Eat On The Good China, I developed the name after reading a letter that Erma Bombeck wrote when she knew she was dying from cancer.  I even put a quote from her on my side bar that I found extremely poignant.

It was around that same time that I had an appendicitis attack – I still had my appendix and it had been chronic since I was 9 years old.  Or at least I thought I was having an appendicitis attack.  We now know that I was having pain from my ovary that was growing into what was being described as a cantalouped size mass.

Fortunately for me at my well woman exam the nurse practitioner noticed what she thought was an enlarged uterus and she ordered an ultrasound because she feared uterine cancer.

The ultrasound was on the Tuesday after Christmas. The words changed, but stayed the same, cancer was still in the phrase, but now it was ovarian cancer.  To it they added terms like tumor and oncologist.

My brand new doctor (I’d never met him prior to the ultrasound tech calling him into the exam) in a brand new town thought I was in shock because I didn’t cry and react hysterically. He just didn’t know  me well enough to know I was really okay.  But, I’m a fixer, so my next phrase is always, what next?  What next turned out to be a referral to MD Anderson Cancer Center and an oncologist, whom I adore by the way!.  She and her team made it possible for me to stay both positive and see the light at the end of the tunnel. Their Motto is “making cancer history” which struck me as the right positive note for me.

The next 2 weeks and 5 days were a whirlwind of blood draws, X-rays, CT scans, MRI’s, chemical stress tests, consultations, clearances and…

I underwent surgery on the 1st knowing full well all the fine print, legal jargon and potential pitfalls of this diagnosis.  I also knew that because of the size, I would awake to only a possible pathology.  I awoke to hear things like “self-contained”, “non-invasive cancer” and “surveillance” as well as the cantaloupe was actually a volleyball with a balloon twist.  While we are still awaiting final pathology I am now at home after a week in the hospital and catering to the whims of a 10 inch zipper through multiple layers of muscle and the needs to get my energy back and regenerate the tissue.

With that, for now, I’ll leave you with this email story that crossed my desk.  True or not, it’s heart warming and endearing and worth the read.  I choose to believe in the bright and positive.
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Mary and her husband Jim had a dog named ‘Lucky.’

Lucky was a real character. Whenever Mary and Jim had company come for a weekend visit they would warn their friends to not leave their luggage open because Lucky would help himself to whatever struck his fancy. Inevitably, someone would forget and something would come up missing.

Mary or Jim would go to Lucky’s toy box in the basement and there the treasure would be, amid all of Lucky’s other favorite toys Lucky always stashed his finds in his toy box and he was very particular that his toys stay in the box.

It happened that Mary found out she had breast cancer. Something told her she was going to die of this disease….in fact; she was just sure it was fatal.

She scheduled the double mastectomy, fear riding her shoulders. The night before she was to go to the hospital she cuddled with Lucky. A thought struck her…what would happen to Lucky? Although the three-year-old dog liked Jim, he was Mary’s dog through and through. If I die, Lucky will be abandoned, Mary thought. He won’t understand that I didn’t want to leave him! The thought made her sadder than thinking of her own death.

The double mastectomy was harder on Mary than her doctors had anticipated and Mary was hospitalized for over two weeks. Jim took Lucky for his evening walk faithfully, but the little dog just drooped, whining and miserable.

Finally the day came for Mary to leave the hospital. When she arrived home, Mary was so exhausted she couldn’t even make it up the steps to her bedroom. Jim made his wife comfortable on the couch and left her to nap.

Lucky stood watching Mary but he didn’t come to her when she called. It made Mary sad, but sleep soon overcame her and she dozed.

When Mary woke for a second she couldn’t understand what was wrong. She couldn’t move her head and her body  felt heavy and hot. But panic soon gave way to laughter when Mary realized the problem. She was covered, literally blanketed, with every treasure Lucky owned! While she had slept, the sorrowing dog had made trip after trip to the basement bringing his beloved mistress all his favorite things in life.
He had covered her with his love.
Mary forgot about dying. Instead she and Lucky began living again, walking further and further together every day. It’s been 12 years now and Mary is still cancer-free.
Lucky… He still steals treasures and stashes them in his toy box but Mary remains his greatest treasure.
Remember….live every day to the fullest. Each minute is a blessing from God. And never forget….the people who make a difference in our lives are not the ones with the most Credentials, the most money, or the most awards. They are the ones that care for us.
 
If you see someone without a smile today give them one of yours! Live simply. Love seriously. Care deeply. Speak kindly. Leave the rest to God.
A small request
All you are asked to do is keep this circulating.
Dear God, I pray for the cure of cancer.
Amen

RECOVERY UPDATE

I did begin my exercising this week, but it’s going slow as there are a couple complications not to mention being so weak from the excessive weight loss so fast.

For the first 6 weeks after surgery I only left the house about 3 times, twice to the surgeon for follow ups and once to church for Christmas. Our biggest fear was me catching something because of my compromised immunity, the drastic surgery and the fact that flu season is so horrible this year.  I’ve only been venturing out for the past 2 weeks and have been VERY cautious where I go and being around those that appear sick. BUT, somehow I managed to pick up a new infection 🙁 and are back on high dose antibiotics and have an ultrasound tomorrow for swollen glands in the back of my neck. I’m not normally paranoid, but I am to the point where I’m afraid to leave the house because I really want to get well and move forward.

I WANT MY STRENGTH & ENERGY BACK!!!

The other complication is learning to eat ALL over again – just like a baby. Food has to be reintroduced slowly and in very small quantities to test for tolerances, as well as be nice to all the suturing that took place.   I ate VERY well before this surgery because of other health conditions, but I eat even BETTER now! So when there are complications it just frustrates me beyond belief.

The picture above is a typical example of a stomach bypass.  Below though you’ll see what mine was.  Because of the ischemic portion there was even more suturing for me.  This surgery was more challenging also because I didn’t need to lose weight (well not this much – 30 pounds so far and still averaging about a 1/2 pound loss every day) so it’s been a serious challenge to get enough calories and food. My FitPal account won’t even post my daily results because they think it’s unhealthy.

Dumping syndrome is a condition that can also develop after surgery to remove all or part of your stomach. Dumping syndrome is also known as rapid gastric emptying. Dumping syndrome occurs when food, especially sugar, moves from your stomach into your small bowel too quickly. Early dumping syndrome is likely to resolve on its own within three months and can completely go away, but it can also last for the rest of your life!

Early dumping syndrome usually occurs 10-30 minutes after eating, but symptoms can occur as early as immediately or as late as 3 hours later (late dumping syndrome). Changing your diet can alleviate the chances of developing dumping syndrome, but unfortunately during the first few months you have to experiment with your food intake to see what your personal tolerances are. Plain old sugar is the BIGGEST culprit in causing dumping syndrome.

Dumping syndrome can be severe for some. Early symptoms can include nausea, vomiting, abdominal cramps, diarrhea, flushing, dizziness, lightheadedness and rapid heart rate. Severe cases can require medication. Late dump symptoms can include sweating, hunger. fatigue, dizziness, lightheadedness, weakness and rapid heart rate.

Fortunately, for me I have only had this syndrome a half dozen times as I’m experimenting with new foods and with limited symptoms; nausea, flushing, lightheadedness and a rapid heart rate. Honestly it feels like you’re having a heart attack and are about to pass out so I am VERY careful with what I eat and more importantly WHERE I eat. We went to lunch today at a popular burger place. We will never be going back for other reasons, but evidently they “sugar” their french fries as so many places do these days to make them brown better. This is assumption on my part, but all I ate was a hamburger patty with cheese, 2 tomato slices and 2 french fries and it ruined the remainder of my day when I ended up having the syndrome.

 

ON THE ROAD TO A FULL RECOVERY

Surgery was 6 weeks ago. I’m probably at 80%, but it still hurts to sneeze, turn over in my sleep and there are a few things I can’t do yet like lift heavy objects (anything over 10 pounds) and I’m still short of energy, but it is time to start getting it all together.

Food is still an issue, but it is getting better, SLOWLY! In 2 more weeks I can start a regular workout which will also be the 7 year anniversary of my Ovarian Cancer surgery, hopefully bringing this whole ill health cycle full circle AND to a close!

The BIG key here is to LISTEN to your body! Being able to talk comfortably WHILE working out is a GREAT pace to start at. Aiming for 30 minutes a day, 5 days a week for cardio and 2 days a week for strength training is a GREAT place to start and build from.

Your body will adapt to the exercising so you can physically push yourself as time goes on. You will also burn less calories as time progresses and these exercises become part of your daily routine. I did do some research though and there are 3 key areas to focus on after this type of surgery:

FLEXIBILITY
Flexibility is the best place to begin to avoid too much straining and injuring yourself. I still feel sore and tight, but know that will pass as time goes on. STRETCHING is the best way to begin. Warm ups and cool down periods are vital for the best exercise routine. Take each stretch slowly and hold it for ten seconds going far enough to feel the beginning of a burn, but stopping short of actual pain! Warming up 5-10 minutes helps get your blood flowing and your heart pumping, and loosens up your muscles. Cool down for 5-10 minutes to reduce your heart rate back down to a normal resting pace.

WARM UP EXERCISES include stretching, walking, jumping jacks or light jogging.
COOL DOWN EXERCISES include walking and stretching as well as helping your body get rid of any lactic acid that was created during your workout. Lactic acid is bad for your muscles.

CARDIO – gives you more energy and helps you sleep better by working through anxiety. In order to get your energy up and boost your metabolism you have to get your body moving! Cardio also strengthens your heart and lungs, increases your bone density as wells as boasting your mental sharpness and ability to focus.

I’ve been walking and doing the treadmill at slow speeds for short periods of time up until now. It’s time to speed up the treadmill a bit and, do some cycling and as soon as things warm up adding in the pool is on the recommended list.

Since I was forced into the surgery and didn’t need to lose the weight I’m not as concerned with the calorie burning as much as I am the getting into shape. But, it’s always nice to know the potential breakdown.

STRENGTH TRAINING – I’ve lost quite a bit of muscle tone and REALLY need to work on this area the most! Having had 6 surgeries in 7 years I seem to have the hardest time regaining my muscle tone with each successive surgery and recuperation. Strength training exercises like squats, lunges, sit-ups, crunches and weight lifting are some great strength training exercise to help build up your “core” and re-tone your muscles. Being more active helps you get back into everyday things and enjoy life more!

Strength training requires a slow start with a gradual build to 3 sets of 15-20 reps. AND this is NOT the time to think no pain, no gain! Any sharp pain requires an immediate stop.

VITAMINS & MINERAL SUPPLEMENTS
The new required vitamins and mineral supplements are mandatory in order to avoid malnutrition. These vitamins and supplements also help build both healthy bone and muscle as well as give you more energy. A regular routine of these helps to maximize the effectiveness of your new exercise routine.