Tag: UNPLANNED GASTRIC BYPASS

RECOVERY IN PROGRESS UPDATE DAY 180

It’s hard to believe we are at the 6 month mark. Sometimes it feels like it’s been 10 years already. Then when I try to eat something I’m not yet ready for I realize, it’s just been a very short time in the realm of relearning how to eat.

PROGRESS REPORT

So, for some weird AND unknown reason many food smells that were once welcoming AND comforting now turn my stomach. The doctor says this is fairly normal, but CANNOT answer why it is “normal”. Some of the once loved foods that I can no longer stand to be around are:

  • hard boil eggs
  • pancakes
  • cabbage
  • sausage

I also cannot eat much bread, potatoes or rices because they take up too much space in my egg sized portion of stomach with virtually no nutrient value.

‘REGULAR’ WILL BE A LONG TERM AND ONGOING LEARNING CURVE for the REST of my life

I have SLE (Systemic Lupus), Fibromyalgia and recently ended up with a non-weight loss stomach bypass that changed my life beyond belief.  Just 6 months ago you would NOT have been able to convince me to EVER give up ALL sugar – (nothing like waking up from a routine surgery and learning it was anything but routine and you can never again have certain things), but I have to say no sugar is NOT the worst thing ever. I ALSO DO NOT do ANY sugar substitutes or preservatives because of the SLE and Fibro. So, while my diet does become a bit limited, it is possible to cope.  The thing I REALLY miss is coffee, but am making it work with green tea which is ultimately so much more healthy.

I had needed to lose 15 pounds or so as we all do at this stage in life, but now at the 50 pound mark lost, the doctor’s concern is that I lose no more and try to maintain where I am – he actually felt that way at the 25-30 pound mark.  Because there is no “real” stomach or holding vessel for food, the body does not absorb much at all.  For that reason I have certain vitamins and supplements that will be 5 times a day for the rest of my life. I also have to be picky on what I eat as many foods still do not agree with me and I can never eat sugar again.  Anything with high fat is also an issue so it really limits my choices every day. The biggest lifetime issue will be the amount (or lack there of) of food I can eat at any given time.  My stomach is now the size of an egg.  My stomach does not and will not stretch. It also does not absorb much in the way of nutrients.  My stomach will NOT grow or change in any way.  Eating is now and always will be in the future something of a challenge.

One of the biggest shocks was the need for ALL new clothes, I went from a size 8-10 down to a 2 so far. I have had to buy ALL new underwear, bras, pants, dresses and even shoes! Yes, I said shoes. I lost an entire shoe size – I didn’t even know that was possible.  This is just one of the piles of shoes I made when trying to find something to fit on Easter morning.

RECOVERY UPDATE

I did begin my exercising this week, but it’s going slow as there are a couple complications not to mention being so weak from the excessive weight loss so fast.

For the first 6 weeks after surgery I only left the house about 3 times, twice to the surgeon for follow ups and once to church for Christmas. Our biggest fear was me catching something because of my compromised immunity, the drastic surgery and the fact that flu season is so horrible this year.  I’ve only been venturing out for the past 2 weeks and have been VERY cautious where I go and being around those that appear sick. BUT, somehow I managed to pick up a new infection 🙁 and are back on high dose antibiotics and have an ultrasound tomorrow for swollen glands in the back of my neck. I’m not normally paranoid, but I am to the point where I’m afraid to leave the house because I really want to get well and move forward.

I WANT MY STRENGTH & ENERGY BACK!!!

The other complication is learning to eat ALL over again – just like a baby. Food has to be reintroduced slowly and in very small quantities to test for tolerances, as well as be nice to all the suturing that took place.   I ate VERY well before this surgery because of other health conditions, but I eat even BETTER now! So when there are complications it just frustrates me beyond belief.

The picture above is a typical example of a stomach bypass.  Below though you’ll see what mine was.  Because of the ischemic portion there was even more suturing for me.  This surgery was more challenging also because I didn’t need to lose weight (well not this much – 30 pounds so far and still averaging about a 1/2 pound loss every day) so it’s been a serious challenge to get enough calories and food. My FitPal account won’t even post my daily results because they think it’s unhealthy.

Dumping syndrome is a condition that can also develop after surgery to remove all or part of your stomach. Dumping syndrome is also known as rapid gastric emptying. Dumping syndrome occurs when food, especially sugar, moves from your stomach into your small bowel too quickly. Early dumping syndrome is likely to resolve on its own within three months and can completely go away, but it can also last for the rest of your life!

Early dumping syndrome usually occurs 10-30 minutes after eating, but symptoms can occur as early as immediately or as late as 3 hours later (late dumping syndrome). Changing your diet can alleviate the chances of developing dumping syndrome, but unfortunately during the first few months you have to experiment with your food intake to see what your personal tolerances are. Plain old sugar is the BIGGEST culprit in causing dumping syndrome.

Dumping syndrome can be severe for some. Early symptoms can include nausea, vomiting, abdominal cramps, diarrhea, flushing, dizziness, lightheadedness and rapid heart rate. Severe cases can require medication. Late dump symptoms can include sweating, hunger. fatigue, dizziness, lightheadedness, weakness and rapid heart rate.

Fortunately, for me I have only had this syndrome a half dozen times as I’m experimenting with new foods and with limited symptoms; nausea, flushing, lightheadedness and a rapid heart rate. Honestly it feels like you’re having a heart attack and are about to pass out so I am VERY careful with what I eat and more importantly WHERE I eat. We went to lunch today at a popular burger place. We will never be going back for other reasons, but evidently they “sugar” their french fries as so many places do these days to make them brown better. This is assumption on my part, but all I ate was a hamburger patty with cheese, 2 tomato slices and 2 french fries and it ruined the remainder of my day when I ended up having the syndrome.

 

ON THE ROAD TO A FULL RECOVERY

Surgery was 6 weeks ago. I’m probably at 80%, but it still hurts to sneeze, turn over in my sleep and there are a few things I can’t do yet like lift heavy objects (anything over 10 pounds) and I’m still short of energy, but it is time to start getting it all together.

Food is still an issue, but it is getting better, SLOWLY! In 2 more weeks I can start a regular workout which will also be the 7 year anniversary of my Ovarian Cancer surgery, hopefully bringing this whole ill health cycle full circle AND to a close!

The BIG key here is to LISTEN to your body! Being able to talk comfortably WHILE working out is a GREAT pace to start at. Aiming for 30 minutes a day, 5 days a week for cardio and 2 days a week for strength training is a GREAT place to start and build from.

Your body will adapt to the exercising so you can physically push yourself as time goes on. You will also burn less calories as time progresses and these exercises become part of your daily routine. I did do some research though and there are 3 key areas to focus on after this type of surgery:

FLEXIBILITY
Flexibility is the best place to begin to avoid too much straining and injuring yourself. I still feel sore and tight, but know that will pass as time goes on. STRETCHING is the best way to begin. Warm ups and cool down periods are vital for the best exercise routine. Take each stretch slowly and hold it for ten seconds going far enough to feel the beginning of a burn, but stopping short of actual pain! Warming up 5-10 minutes helps get your blood flowing and your heart pumping, and loosens up your muscles. Cool down for 5-10 minutes to reduce your heart rate back down to a normal resting pace.

WARM UP EXERCISES include stretching, walking, jumping jacks or light jogging.
COOL DOWN EXERCISES include walking and stretching as well as helping your body get rid of any lactic acid that was created during your workout. Lactic acid is bad for your muscles.

CARDIO – gives you more energy and helps you sleep better by working through anxiety. In order to get your energy up and boost your metabolism you have to get your body moving! Cardio also strengthens your heart and lungs, increases your bone density as wells as boasting your mental sharpness and ability to focus.

I’ve been walking and doing the treadmill at slow speeds for short periods of time up until now. It’s time to speed up the treadmill a bit and, do some cycling and as soon as things warm up adding in the pool is on the recommended list.

Since I was forced into the surgery and didn’t need to lose the weight I’m not as concerned with the calorie burning as much as I am the getting into shape. But, it’s always nice to know the potential breakdown.

STRENGTH TRAINING – I’ve lost quite a bit of muscle tone and REALLY need to work on this area the most! Having had 6 surgeries in 7 years I seem to have the hardest time regaining my muscle tone with each successive surgery and recuperation. Strength training exercises like squats, lunges, sit-ups, crunches and weight lifting are some great strength training exercise to help build up your “core” and re-tone your muscles. Being more active helps you get back into everyday things and enjoy life more!

Strength training requires a slow start with a gradual build to 3 sets of 15-20 reps. AND this is NOT the time to think no pain, no gain! Any sharp pain requires an immediate stop.

VITAMINS & MINERAL SUPPLEMENTS
The new required vitamins and mineral supplements are mandatory in order to avoid malnutrition. These vitamins and supplements also help build both healthy bone and muscle as well as give you more energy. A regular routine of these helps to maximize the effectiveness of your new exercise routine.

WEEK 4 UPDATE – RECOVERY IN PROGRESS

The bottom line to me is THIS JUST ISN’T FAIR. I didn’t need this surgery for its original intended purpose, I don’t drink or do drugs. I don’t do fast food. I have cooked from scratch (FRESH perimeter shopping, no boxes or cans) for over 30 years since I was first diagnosed with Systemic Lupus and Fibromyalgia. That said, it just proves my point that LIFE isn’t FAIR!

Despite doing everything right most of my life, I’ve ended up with the Systemic Lupus, Fibromyalgia, Ovarian Cancer and have now had an unnecessary gastric bypass because of FAILED MESH to fix a hiatal hernia, not once, but twice before!

So, while, it isn’t fair, it is now reality and I’m learning a new normal. My NEW NORMAL isn’t that much different from my old normal food wise except for amount, frequency and the BIG addition (or subtraction) of ALL sugar, most carbs and fat from my diet. I watched my sugar before, but I did take it in my 1 cup of coffee in the morning and the occasional holiday sweet. I REALLY miss coffee.  Now though there is the possibility of “DUMPING SYNDROME” which frankly scares the hell out of me. As time passes the threat of this will become less and less.  The doctor said he truly believes that by the time I’m “released” in March I will be able to eat and drink WHATEVER I want. Here’s hoping!

I had a really cool doctor doing my Upper GI test today and he showed me everything as he was doing it and where the dye was going.  Good news is there are no  leaks!  The freaky thing was his showing me my “new” stomach and it’s actual size. OMG it’s tiny – like a small hard boiled egg and it does not stretch or give at all.

DUMPING SYNDROME happens because there is no longer a “holding” vessel aka your stomach for food to sit in and gradually pass along to the small intestine. When sugars and starches that you have eaten are dumped into the bowel, they may act like sponges, rapidly absorbing water from the body into the intestine.  This leads to a number of symptoms including diarrhea, low blood sugar and feelings of weakness or dizziness.

ALL Food now passes directly into the small intestine hence why the small amounts, more frequently are more important than ever. From what I’ve read up to 75% of gastric patients may experience DUMPING SYNDROME at some point in their life, but it is most common immediately after surgery and may subside over time. The key is to avoid ALL the triggers.

There are two phases of dumping syndrome; early dumping phase and late dumping phase.

Early Dumping Phase 15-30 minutes after eating
• Caused by rapid entry of food into the small intestine
• Symptoms include nausea, vomiting, cramps, abdominal pain, diarrhea, and feeling full after eating only a small amount of food. Weakness, flushing, dizziness and sweating may also accompany early dumping syndrome.

Late Dumping Phase 90 minutes to 3 hours after eating
• Caused by a rapid rise in blood sugar followed by a rapid decrease in blood sugar
• Symptoms may include sweating, fast heart-rate, weakness, feeling tired, anxiety or mental confusion

General Guidelines to Prevent Dumping Syndrome

  • Eat six to eight small meals daily to avoid eating too much at a time.  You may be able to tolerate larger portions over time, but keep servings small at first.
  • Have a protein food with each meal and snack such as meat, poultry, fish, eggs, milk, cheese, yogurt, nuts, tofu or peanut butter.
  • Do not drink liquids with meals. Drink 30 to 60 minutes before or after meals. Eventually you may tolerate small amounts of liquid with meals.
  • Limit high-sugar foods such as soda, juice, Ensure, Boost, cakes, pies, candy, doughnuts, cookies, fruit cooked or canned with sugar, honey, jams, jellies.
  • Choose high-fiber foods when possible.  These include whole wheat breads and cereals, whole wheat pasta, fresh fruits and vegetables.
  • Choose foods high in soluble fiber.  This includes apples, oats, beets, Brussel sprouts, carrots, spinach and beans.
  • Try adding a serving of fat to meals and snacks such as butter, margarine, gravy, vegetable oils, and salad dressings.  Fats slow stomach emptying and may help prevent dumping syndrome.
  • Some people find that avoiding very hot or very cold foods can be helpful.
  • Chew foods well and eat slowly. Try to relax while eating.
  • Lying down right after eating may lessen symptoms.

YAY!! Today we start the new phase of my diet – trying to add back in fresh fruits and vegetables in VERY small amounts. I have to say that I have missed salads the most! I’m praying I can tolerate that salad!

HAPPY HOMEMAKER & MENU PLAN MONDAY week 50 of 2017 DAY 5 of RECOVERY

I hope everyone had a wonderful week and are having a wonderful holiday season. I’m home from the hospital, but will address that in the Things On My Mind section.  The weekend was quiet and VERY uneventful thankfully.

OUTSIDE MY WINDOW & THE WEATHER OUTSIDE

Temperatures are FINALLY down into the tolerable range. We even had to turn the heat on when we got home from the hospital on Friday. Friday was an ironic day here in southeast Texas.  7 years ago when I had my cancer surgery, we had a rare ice storm in the area.  Then we moved away for several years, but came back to work on my grandparent’s house and are here again for this surgery.  Ironically, we had SNOW last Thursday and Friday. yep I said snow! What a shock that was to wake up to in the middle of the night! I don’t get to go outside for another week give or take so am not yet enjoying the change in temperatures though.

ON THE BREAKFAST PLATE

3 ounces of peach high protein drink.

AS I LOOK AROUND THE HOUSE / WEEKLY TO DO LIST & HOUSE PROJECTS

Unfortunately for the next 90-120 days this is hubby’s category. I am not allowed to do anything or lift anything heavier than a bag of flour.  Hubby is being a GREAT sport though and tending to my every need. Because of the risk of infection we are still having to wash every day.  He’s just not used to doing it, the vacuuming, cleaning up after the cat and dog, etc…

  • LAUNDRY... quite a few loads this week, towels, bedding and clothing
  • LIVING AREAS... I did a serious deep clean just before surgery so am hoping this will get hubby through until March LOL NOT
  • KITCHEN… pretty clean
  • STUDIO… is mainly storage these days so nothing going on there
  • YARD… nothing much
  • BLOG… some recipe updating, future post planning and holiday post planning

CURRENTLY READING & TELEVISION / DVR

I haven’t done any reading since last Tuesday, but am hoping to do some later today and get back into a routine. I’m still trying to finish Ava Miles book #9 Calendar of New Beginnings.

  • BIG BANG THEORY and YOUNG SHELDON
  • NCIS, NCIS NEW ORLEANS and NCIS LA, CRIMINAL MINDS, S.W.A.T.
  • MADAM SECRETARY, SCANDAL, DESIGNATED SURVIVOR
  • CHICAGO FIRE, CHICAGO PD, CHICAGO MED later this season
  • BRAVE, VALOR, SEAL TEAM
  • LAW & ORDER SVU, BLUE BLOODS, HAWAII 5-0
  • MACGYVER, SCORPION, BLINDSPOT, ORVILLE, WISDOM OF THE CROWD
  • Z NATION, WALKING DEAD, FLASH, DC LEGENDS, INHUMANS
  • THE GOOD PLACE, AMERICAN HOUSEWIFE, SPEECHLESS, GREAT NEWS
  • THIS IS US, ONCE UPON A TIME, THE GOOD DOCTOR
  • GUY’S GROCERY GAMES, BEAT BOBBY FLAY, BOBBY AND DAMARIS

CRAFTS / PROJECTS

Probably nothing this week, but am hoping to start sketching the door series and tree of life next week.

MENU PLANS FOR THE WEEK

This category is a sad and sore subject for me until about March.  My surgery did not go as planned which is changing so much about food, but sure beats the alternative of being 6 foot under. Hubby is loving being able to eat what he calls bachelor food – S.O.S., chili, hot dogs, hamburger helper, etc… I told him NOT to get used to it though, as soon as I can cook again we will be eating healthier than ever.

MONDAY
TUESDAY
WEDNESDAY
THURSDAY
FRIDAY
SATURDAY
SUNDAY
2 times a day
3 ounces PROTEIN drink and GREEN Tea
3 ounces PROTEIN drink and GREEN Tea
3 ounces PROTEIN drink and GREEN Tea
3 ounces PROTEIN drink and GREEN Tea
3 ounces PROTEIN drink and GREEN Tea
3 ounces PROTEIN drink and GREEN Tea
3 ounces PROTEIN drink and GREEN Tea
2-4 times a day
4 ounces strained pureed soup
4 ounces strained pureed soup
4 ounces strained pureed soup
4 ounces strained pureed soup
4 ounces strained pureed soup
4 ounces strained pureed soup
4 ounces strained pureed soup
2 times a day
4 ounces vanilla yogurt
4 ounces vanilla yogurt
4 ounces vanilla yogurt
4 ounces vanilla yogurt
 4 ounces vanilla yogurt
4 ounces vanilla yogurt
4 ounces vanilla yogurt
2 times a day  4 ounces jell-o 4 ounces jell-o 4 ounces jell-o 4 ounces jell-o 4 ounces jell-o 4 ounces jell-o  4 ounces jell-o

SUCCESSFUL RECIPE LINKS FROM LAST WEEK

These are recipes that have been waiting in cue to post, I’m definitely NOT back to cooking yet.

HEALTH & BEAUTY TIPS

HOMEMAKING/COOKING TIP

ON MY MIND / THINGS THAT ARE MAKING ME HAPPY

You know the old Yiddish proverb, Man Plans, God Laughs? If not, you should learn it just to keep yourself sane.

So, as many of you know I have been suffering from some health issues the past few years, especially this last year. To give you a quick background when I was 24 I was diagnosed with Systemic Lupus and not doing well. Several months into the disease I went to my rhuematlogist, held out my hand with 32 pills in it and said “I can’t live this way”. She agreed and we moved into treating the disease and it side affects like Fibromyalgia with diet or better said, lack of diet.  I immediately gave up ALL steroids, preservatives, splendas, aspartames, diet food of any kind, non GMO food, canned “food”, boxed “food”fast food as a whole and started perimeter shopping and scratch cooking with “REAL” foods. My life immediately improved.

Fast forward many years to 2011 and my oncologist claiming this change in food prep and eating for all those years saved my life when she was able to lift out a twice torsioned (wrapped around the ovary 2 times) volleyball sized ovarian tumor from my body intact and I have been NED (no evidence of disease) for almost 7 years since.  She decided it was because the cancer had nothing else to feed on in my body except itself. I knew I was extremely blessed when after 6 more months of testing everything and everywhere to make sure it was the only tumor, that they found none.

Fast forward another year and I’m having problems with the hiatal hernia that my cancer doctor found, but left alone. Enter a new gastroenterologist who was able to fix the hiatal hernia and shredded esophogaus with a Nissen Fundoplication (2012). This didn’t alter what I ate except in the beginning 2 months, but did alter how much and how often I ate.  I also gave up 90% of bread – just filled me up too fast.

Fast forward 9 months (2013) and the mesh from the Nissen Fundoplication failed requiring a revision surgery and another period of liquid food adjustment.

Fast forward to 2016 and the E.Coli bacterial infection that landed me in the hospital with a concussion because I lost consciousness and fell after becoming violently ill.  For the next 13 months I was tested by neurology and cardiology for my symptoms before they finally handed me off to gastroenterology which had a HUGE wait time so my wonderful primary doctor got tired of waiting and began doing logical testing on her own. She was the one who found the hiatal hernia (again) and referred me to the surgeon.  His testing was further delayed another 6 weeks past their normal backlog by Hurricane Harvey.  I love my surgeon and his immediate staff as well as my hospital nurses Ericah and Lexi.  Other than that the hospital will be getting a not so favorable review from me.  The recovery nurse should NEVER have contact with human beings and the respiratory therapist is negligent with he lack of follow through and the nurse’s aides need to be trained in patient care and helping.

We went into last Wednesday believing he was going to be able to fix the fix on the revision surgery.  Unfortunately this is where the Yiddish proverb enters.  I had planned food and EVERYTHING on the fix of the fix, but he was unable to correct the issue and had to make a drastic decision to do a bypass. This is a HUGE DRASTIC LIFE CHANGE for anybody, but for me there is very little information written on it for someone who isn’t doing it for weight loss.  I mean EVERYTHING written about the subject is for people who need to lose significant amounts of weight. The diet is strict and I can live with that, but the recovery time has now doubled!  Once recovery time is over I can live with the longterm lifetime diet and special vitamins as it is high protein, lowfat and REALLY healthy which is right up my alley anyway.

So here we are on day 5 of 90-120 days of nothingness except keeping a food and medicine journal.  I cannot tell you how much ALL of your thoughts and prayers have meant to me and are seeing seen me through this ordeal. There is 1 good thing. I did want to lose about 15 pounds and now that is going to be a given. 😀

FAVORITE PHOTO FROM THE CAMERA

I was able to get most of my elf on the shelf photos taken before surgery and definitely have a few favorites. 😀

INSPIRATION

Be sure to link up with Sandra at Diary of a Stay at Home Mom for Happy homemaker Monday, Terri at Darling Downs Diaries and with Laura at I’m an Organizing Junkie for Menu Plan Monday.